The POWER Governance Board oversees the overall mission of the registry. Responsibilities include determining goals, policies and procedures for POWER; establishing parameters for recruitment, enrollment, and participation of sites in POWER; creating codes of conduct for sites and mechanisms for their enforcement. Board members review and approve reports from POWER committees for internal and external distribution and implement approved recommended policies and procedures.
They review and provide final approval of research proposals and resulting manuscripts and provide recommendations to the Data Coordinating Center (DCC) for POWER on the selection of data elements and reporting on outcomes. They review and approve allocation of POWER funds available that exceed the costs for supporting the infrastructure and activities of the DCC for POWER. Finally, the board conducts an annual review of POWER and the DCC to meet projected outcomes and expectations.
The POWER Communications Committee is responsible for managing internal and external web resources for POWER. These include:
1. POWER website, which is intended to inform the public about POWER’s mission and participating sites and members, distribute new information and disseminate research findings from abstracts and manuscripts reporting on POWER outcomes.
2. POWER SharePoint site, which is accessible to POWER Work Group members and sites - serves as a central location for approved documents, resources, POWER Work Group webinar slides and recordings.
SharePoint also allows for communication among members through discussion boards and sharing working documents such as draft manuscripts.
The POWER Data Monitoring & Outcomes Committee makes recommendations to the POWER Governance Board with input from members of the POWER Work Group on the following:
1. Selection of the data elements to be collected in the POWER registry
2. Selection of a set of outcomes to be derived from the POWER aggregate data set and technology for sharing with members of the POWER Work Group via the POWER SharePoint site
3. Procedures and guidelines for how participating sites may access individual and aggregate data for review
4. When and how to best report the selected outcomes from the POWER aggregate data set to the public and medical community in the form of abstracts/publications/press releases
5. Selection of outcomes and/or process measures to be tracked over selected time periods as part of a quality improvement initiative.
The POWER Research Committee is responsible for supporting investigators in developing research proposals using the POWER aggregate dataset (but not exclusive of local or additional datasets). The Research Committee will also assist with developing and promoting research priorities for POWER, and identifying extramural funding opportunities to help sustain the efforts of POWER.
The POWER Data Coordinating Center (DCC) is responsible for the coordination, management, and reporting of the data collected for the POWER program. The DCC developed and maintains the database that is used to store and manage the data and for the development and production of the patient characteristics and outcomes reports. In addition, the DCC provides statistical support for research projects.